Here is a quick history of Noah and his condition.
Noah was born on November 19th, 2010 via scheduled C-Section. We were thrilled to have our new healthy baby boy with us. When he was 2 weeks old we noticed that he kept his left hand in a fist. At first we didn’t read a lot into it. We brought it up to the Pediatrician multiple times but were assured that it was normal. By the time he was 4 months old we knew something wasn’t right. After fighting to get a referral to see a Physical Therapist, our suspicions were confirmed. His PT referred him to a Neurologist, who agreed he needed an MRI. We will never forget that day. It was one of the hardest things to watch our little Noah, only 7 months old, be sedated for a procedure like that. Luckly he came out of the anesthesia quickly and returned to his normal happy self! The MRI showed significant brain damaged caused by a Fetal Stroke.
At just 7 months old, our plan for Noah’s life had dramatically changed. His official diagnosis is Hemiplegia, left side paralysis. He is unable to use his left hand/arm for more than gross motor activity, and even that activity is very limited.
Since then he has also had a CT Scan, an Upper GI, and a ton of blood work to check for additional damage to other areas. Thankfully those all came back clear. He goes to physical therapy and occupational therapy once a week and will soon start speech therapy. He wears a splint on his left hand to help his thumb move the correct way. He also wears Kinesio Tape on his left arm to help it supinate (which means to turn face up).
It is truly an inspiration to see what Noah can do, especially after seeing his MRI results. He has a long way to go, but with the amazing support of our family and the Children's Healthcare of Atlanta staff, we know he will get there.
No comments:
Post a Comment